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VANDERBILT UPDATE: Yesterday I saw my rheumatologist at Vandy and it's a lot to update so I'm just going to make a list. ----------------- •Anemia is looking stable, we will continue iron infusions as needed. ----------------- •We don't really know what's going on with the bruising and red spots, so we are just watching it for now. Nothing "Lupus-y" she suspects! ----------------- •With the return of syncopal episodes (passing out) she thinks IVIG could help that, but wouldn't impact my disease progression. Ultimately up to the Autonomic Team to decide, but she gives the ok to whatever they decide. ----------------- •My pain increasing in my hips is making her question if it could be vascular necrosis in the bone so we are doing an MRI just to be safe. I had a preliminary x-ray done while I was there. I'll keep you updated. ----------------- •My kidney numbers are still showing distress so we will be doing a kidney biopsy in the near future to determine the cause. It's either Chronic damage from Lupus (which is not treatable), New damage from Lupus (they would do six rounds of high dose chemo and steroids to try and reverse the damage), or a different disease entirely. ----------------- •We decided all testing would be done at Vanderbilt so that all of my teams up there will be the first to get the results and can then decide what to do. Care and treatments are all still going to be done at Northside Cherokee. ----------------- I know how daunting this all sounds, and it is rather intimidating, but nothing has stopped me yet! I'm going to stay positive and you guys should too. Whatever comes out of these next few tests is in God's hands. I'm #StillFighting and #StillSmiling . ----------------- Now, please enjoy this awesome video of Sarah and I's adventures! We got to meet Todd O'Neill (country artist) and listen to him sing, then after the appointment and tests, we had some barbecue (because it's Nashville!) and stopped at Mike's Ice Cream Shoppe. Finished the day hanging out by the river and I had to show Sarah "hipster-land" (aka: Pinewood Social) before we headed home. Long day, but we still had some fun!!

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Why today i'm looks so red??maybe because l'm reddd🤔oh noooooo #stillfighting #stillhope #lemburakhirbulan #caiyo #nike #guess #gabolehnyerah

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Been fighting #patriarchy for a while now, just about 23 years to be exact, just as strong now, with renewed interest in fighting against presidents, laws, and policies that do not exist to serve us! I know we can topple, this system of oppression because #feminism will win, in fact we are already winning!!! #ibelievethatwewillwin #alreadywinning #winning #littleme #muscles #amurica #stillfighting #lovewins #lovelovelove #fbf #staystrong #rememberyourroots #cincinnati

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My favorite meal to order at the hospital, Salmon cake with homemade dijon dill sauce, baked potato, a side salad(all of them are good but the greek one is my fave) and of course my La Croix sparkling water. After 3 stays since January I have learned the menu and stick to my favorites just to be safe! . . . . . #homenow #dinnerinbed #lupus #lupusfighter #lupuslife #lupusnephritis #spoonie #stayingpositive #positivethought #stillfighting #glutenfree #eathealthy

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Being sick sucks! I feel like my head is going to explode! #tgifriday #stillfighting On a side note, the sky is gorgeous today! #happyfriday #weekendloading #washingtonstate #pnw #bluesky #beautifulclouds

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I dear god if today i lose my hope, please remind me that your plans are better than my dream .. I have faith in you god ️️🦁 #Godisgood #Stillfighting

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"Combien de fois on a dit que c'était la fin de sa carrière ? Combien de fois on a pu dire qu'avec son jeu à 25 ans il serait cuit ? Combien de fois j'ai pu lire, l'année dernière, que Rafael Nadal était terminé ? Mais ces très grands Champion ne meurent pas en une fois, ils meurent en plusieurs fois. À l'image de Federer, qui resurgie cette année, alors qu'en 2013 quand il avait des problèmes de dos on disait que sa carrière était fini" Fabrice Santoro #rafaelnadal #nadal #rafaelnadal #rafa #tennis #kingofclay #recordman #amazing #mylove #terrebattue #clay #montecarlo #monaco #onlyyou #thebest #legend #champion #spain #lemeilleur #love #impossibleisnothing #nevergiveup #stillfighting #decima #rolandgarros #2017i

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"Gagner dix tournois, ici à Monaco, je ne sais pas, je n'ai même pas d'adjectifs. Parce que dix fois Monte-Carlo c'est déjà beaucoup. Remporter 10 tournois dans sa carrière c'est beaucoup , c'est énorme. Mais alors gagner dix fois sur le meme court ? Personne ne l'avait fait avant lui, personne ne le fera après. Je serais ravi que Rafa gagne une dixième fois à Roland-Garros. C'est un compétiteur hors-norme, très humble. C'est un guerrier quelque part" Fabrice Santoro #rafaelnadal #nadal #rafaelnadal #rafa #tennis #kingofclay #recordman #amazing #mylove #terrebattue #clay #montecarlo #monaco #onlyyou #thebest #legend #champion #spain #lemeilleur #love #impossibleisnothing #nevergiveup #stillfighting #decima #rolandgarros #2017

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My bathroom has become a little kitten ICU and been completely taken over by medical supplies, heaters, humidifiers, etc. Fostering neonates is seriously no joke. Momma cat or no momma cat, the terms of your commitment can change in an instant. I can't save them all but I'm sure as hell trying my best to save these little ones. #stillfighting #fosteringsaveslives

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It's been a strange week feeling that I've just been keeping one step ahead of the grey clouds, urging Friday to arrive quicker so I can step away from the pressures of my work. The physicality of it is daily affecting my mental state as I'm concerned that I'm not doing myself justice, although nothing has ever been mentioned, it gnaws away at me constantly wearing down my defences and causing me some sleepless nights. The aging process is about getting the balance right and right now I'm out of kilter. This is my music of choice tonight it's The Fall of Hearts by Katatonia.#classicmetal #progressive #progrock #katatonia #fallofhearts ##mentalhealth #mentalhealthawareness #anxiety #stress #depression #lastsongbeforethefade #tired #stillfighting

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